For further information on Moebius Syndrome, please contact:
Moebius Syndrome Support Network
(Newsletter, Networking, Information, Referrals and Phone Support)
- Donations may be made payable to
-
The Moebius Syndrome Foundation,
c/o
Vicki McCarrell
- PO Box 147
- Pilot Grove, MO 65276
- 660-834-3406
Other Moebius Syndrome-Related Resources:
- AboutFace-Canada
123 Edward St Ste 1003
Toronto M5G 1E2
800 665-3223 or 416 597-2229
www.aboutfaceinternational.org
- or
- AboutFaceUSA
PO Box 969
Batavia IL 60510-0969
888 486-1209
www.aboutfaceusa.org
- Children's Craniofacial
Association
13140 Coit Rd Ste 307
Dallas TX 75240-5725
800 535-3643 or 214 570-9099
www.childrenscraniofacial.com
-
- FACES (new name): The
National Craniofacial Association
800 332-2373
www.faces-cranio.org
- Forward Face
317 East 34th St Suite 901A
New York, NY 10016
212 684-5864 or 800 FWD-FACE
www.forwardface.org
- Let's Face It
PO Box 29979
Bellingham WA 98228-1972
www.faceit.org
- Super Kids
- (A newsletter for families & individuals with limb differences)
- 60 Clyde St., Newton, MA 02160
- Talk Tools
- Tools for Oral-Motor Therapy - Sarah Rosenfeld-Johnson
- www.talktoolstm.com
- Feeding and Speech Clarity Issues in Moebius Syndrome
Study of Children With Moebius Syndrome
- Susan Bryson Ph.D. & Wendy Roberts MD from the
- Hospital for Sick Children in Toronto, ON, Canada
- are doing research on the development of children with Moebius Syndrome.
- They are focusing on the correlation between Moebius Syndrome and Autism.
- For more information contact:
moebius_hsc@hotmail.com
- Web: www.sickkids.on.ca
-
- Smile Surgery - Hospital
for Sick Children
-
- Toronto, Ontario, Canada
- Website
-
- Body Brushing - Steve Clark
-
Nederlandse
-
- www.moebius-italia.it
- info@moebius-italia.it
Other Moebius Syndrome-Related Web Pages:
If you know of any Moebius Syndrome information resources which
are not listed here, please e-mail the
Moebius Syndrome Support
Network
and we will gladly add them to this page.
(Updated August 11, 2002)
Return
to the Moebius Syndrome Support Network Homepage.
