Moebius Syndrome News

Moebius Syndrome Foundations

Support Groups Worldwide

This has been an incredible year for growth for Moebius Syndrome Support!
Following is a list of groups worldwide:

Updated 10-Aug-06

Moebius Syndrome Foundation Moebius Syndrome Foundation Vicki McCarrell PO Box 147 Pilot Grove, MO 65276 660-834-3406 vickimc@iland.net	France Support Group Laurent Echochard 13 rue Mollien 92105 Boulogne Bilancourt Cedex Boite Postale 30058 France info@moebius-france.org
Mid-Atlantic Support Group Dan and Sharon Deveney 7 Copper Court Fredricksburg, VA 22406 540-752-7834 Email:sbdeveney@hotmail.com	Italy Support Group: Renzo DeGrandi Piazza Libero Grassi 3 Muggio Milano Italy 20052 info@moebius-italia.it
Texas Support Group Phyllis Richards 105 Chaparral Drive Burleson, Texas 76028 817-295-0362 Email:tomadam@flash.net	Danish Moebius Syndrome Organisation Bo Krogh Nielsen Ringerbakken 11 DK 2830 Virum Denmark
Northern California Group Marcia Abbot 59 Sylvan Way Piedmont, CA 94610-1052 days: 510-268-2229 or Evenings: 510-835-1318 Email: moebiusca@aol.com	Southern California Group Lori Thomas 38883 Foxholm Drive Palmdale, CA 93551 805-267-2570 Email: lorit@netport.co
Moebius Warriors International Webmaster: Tom Voorheis http://www.moebius1.org	Canadian Support Group Moebius Syndrome Association Sandy Batenburg 5011 Hillside Drive Beamsville, Ontario, L0R 1B7 (Canada) Email: batenbur@vaxxine.com
Moebius Syndrome Foundation of Australia Faye Broadhurst 37 Oakover St East Fremantle Western Australia 61S8 bhurst@iinet.net.au	Holland Support Group Peter Mul Havik 79 4872 WX Etten-Leur Holland 076-502-3267
German Support Group Moebius Syndrom Deutschland e.V.P.O. Box 4109D-30041 Hannover Germany Falco Schleier Email: Falco.Schleier@t-online.de Web:www.moebius-syndrom.de	England Support Group Linda Anderson 21 Shields Road Whitley Bay Tyne & Wear NE258UJ England (Linda formed the very first Group) Email: alex_barker@lineone.net
France Support Group Laurent ECOCHARD Président de l'Association Syndrome Moebius France Boîte Postale 30058 92105 BOULOGNE BILLANCOURT CEDEX Email: info@moebius-france.org Site web: http://www.moebius-france.org/ Mobile: +(33) 6-64-36-06-45	Spain Support Group Fundacion Sindrome de Moebius de Espana Carmen Leal/Julian Calabria Plaza Santiago/Grisolia #2 Puerto Cuatro Valencia 46022, Spain, 011-346-372-5035 http://www.digitel.es/icom/ sindromemoebius
Sweden Support Group Rangela Fredsjo Rubingatan 33 SW-421 62 Vastra Frolunda Sweden, 46-31-47 14-70 RangelaFredsj/v, Biomedicinska bibl., Goteborgs universitetsbibliotek	South Africa Support Group Teresa Kirk PO Box 1994 Honeydew 2040 South Africa teresa@geopractica.co.za
Peru Support Group Milena Portaro Av La Paz 1362 Lima 18, Peru 511-446-7665	Columbia Support Group Norma Hincapie Manzana 3, No 38 B-09 Urbanizacion la Villa Tulua, Valle del Cauca Colombia Contact Norma at mgarciber@yahoo.com
Israel Support Group: Hella Edvi P.O.Box 1096 42823 zuran Israel	Brazil Support Group: proseg2@uol.com.br and moebius@moebius.org.br www.moebius.org.br Contact: Mr. Reinaldo

If anyone has a support group which is not listed, or knows of a group, please let us know and we will gladly publish it in our next newsletter.
We’re thrilled that so many groups are so active.
-Vicki McCarrell, Editor

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